Here’s one cool dude…
Noah is having light therapy with these styling shades. There are light sensors inside the lenses that send pulses and stimulate his eyes and brain. Today he had acupuncture and opened his eyes, moved his head to one side and shrugged his shoulder! He is currently enjoying the sounds of Mozart…we still need to get the sound frequency therapy to stimulate the connection between his ears and his brain, but in the meantime, the classics will definitely do. I brought over the whole collection.

Noah has been producing great urine output and has stooled on his own for the last 3 days, while off the continuous feed of formula. He will begin baby steps of food again on Wednesday morning. We are going to treat him like a baby bird that has to have small amounts, because we are going to use his g-tube again…we will introduce very small boluses of food into his “Mickey button” and slowly increase it over time. We want to use his belly again because we want to slowly reconnect the digestive system, including placing “tastes” on his tongue to stimulate the brain/mouth connection.

Anyway, I have to go home and go to bed. Jason’s here tonight. I have to take advantage of this time to snuggle and sleep with Emily because she NEVER used to snuggle before all this happened. Now, she likes to “nuggle” every night! It’s SO great! Good night to you all and may God’s PEACE be in your hearts and minds, may His grace be abundant in your life, and may our lives reflect it to everyone we meet…



8 Responses

  1. So happy to hear about these steps in the rigt direction. Continuing to pray for little Noah and all of you.

    Wendy in IA

  2. I was just going to ask a couple of days ago if Noah was able to open his eyes and move at all. Praise God for this! God has His own ways of giving at Christmas doesn’t He?

  3. You and your family are continually in my prayers, I am encouraged by the small miracles and wait patiently with you for the big ones too. Hugs for Noah- the best therapy there is!


  4. You are the most amazing person I know. I am so proud of you and how you are journeying through this. My heart is with you in prayer and love. Thank you again for coming to Kansas City for my wedding – I am honored to call you my friend.

    Molly in KC.

  5. Hey you guys – this is the first time I’ve commented on the site, but have been praying for Noah and for God’s hand in all this often. Today is Christmas Eve, and I have been thinking about the amazingly powerful way God came to us, to be with us – He came wrapped in flesh as a child, a newborn baby, so He could experience every thing we could possibly experience in our lives and feel all the joy and pain. It touches me to think that He knows exactly how Noah feels, and created him with His own hand, so lovingly, and can count every hair on his head, as well as his days. You have trusted God so fully with Noah’s recovery, and his future, and I will continue to pray for your strength and walk of faith…you guys are loved!

    Beth Lang

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