First of all, thank you for all of your support today, physically and through prayer during the meeting. It was a blessing to us to have so many familiar faces in the room and be encouraged in that way. Regarding the meeting, Jason and I didn’t expect “action” to take place, and it didn’t. It was about what we expected…a surreal experience where we are trying to put our desire to save our son’s life into words…there was no conclusion, especially since there is no diagnosis, which we emphasized we were beyond, but basically it was a forum to hear what our intentions are with Noah, which in our hearts is not to give up on him. As far as what the hospital can and will do at this point, well, it remains unanswered…they said at closing it’s an ongoing discussion, to which one physician said, “I think we owe it to the family to come back to them at a specified time with an answer because this has been ongoing for four months now…” Meanwhile, we continue to seek second/third/fourth opinions of experts around the nation. We also continue to do research regarding umbilical cord stem cell transplants. We have a lot of homework to do. As far as care goes for Noah, he continues on supplements and will begin regular treatments of acupuncture to follow the ones he had from his Uncle Adam. Too bad we aren’t in a Chinese hospital where they do acupuncture everyday. Noah has had some positive responses to it. I know many of you wanted an answer or course of action from today’s meeting, but at least the hospital is aware of Noah at an administrative level. Now we continue to do what we’ve been doing this whole time…praying and trusting God with our kids, that as we stated before, really aren’t ours at all…



10 Responses

  1. Ade, I was praying for you today and thinking about you guys. Thanks for posting an update. Love you, friend…Cristine

  2. know that Noah is building an ark…it is being filled as we read this…always dwell in Jesus’ arms as a family…those bonds are unbreakable…my prayers continue to lift you up as an unknown “granny”…remember God loves you…continue to believe in miracles…you are loved by many…Noah is an angel…sometimes they walk among us…sometimes for a lifetime…always for a moment…

  3. We will continue to pray for you and your family for strength and for peace. Awareness is the first step and I’m glad that you have that now. I’m praying that action will follow, keep strong!

  4. Adrienne,
    Thanks so much for the update, and for continuing to share Noah, and your heart with all of us.

    All of you remain in my prayers.

  5. We’re thinking about sweet Noah and all of you – Ade, Jason & Em so much, especially this week with the meeting on Tues. You are in our hearts and prayers.
    Mariah & Marc

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