Our handsome guy…
Leaving for four days was good because I was able to see improvement. Noah’s skin is terrific! I’d say there’s a 97% improvement! No more crusty, red, oozy, or dry cracky stuff! It’s truly amazing!

As far as his care goes, we are giving him supplements that include food at the cellular level, natural supplements, herbs that help kill the bacteria, anti-fungal meds, and soluble fiber from my friend that encapsulates fat where toxins are stored and takes it out of the body. He is being sponsored by a local non-profit that supplies nutrients to medically fragile children. We are going to a testimony night on Friday the 10th at the Convention Center to hear more about it, if anyone is interested.

The hospital is doing its part trying to get things rolling regarding home care and equipment. We’ll be applying for Medicare and Medicaid which speeds the process along. We have insurance, but it runs out next November, so government assistance is crucial.

We are increasing Noah’s antifungal tomorrow. He’s got some thrush on his tongue, so that increase should help. Some of you have asked about NALD, but Noah tested negative for that particular leukodystrophy…that is what keeps the docs on their toes…everything they have thought it was, it wasn’t…that’s why our own theories seem to hold more and more weight…

More updates tomorrow, but now, it’s family time. Have a wonderful new week with family, friends, co-workers, neighbors, and strangers. Ask God how He wants to use you this week and let go and watch Him work! Posted by Picasa



8 Responses

  1. You are such an inspiration, to read about all the things you and your family have been going through and yet you continue to stay so positive and upbeat, Noah is truly blessed to have the two of you as his parents. Thank you for all the prayers and inspiration you give all of us..

  2. As one of Noah’s primary nurses I am truly blessed by him and of course your family. Thank you for letting me part of his care. Know that I am praying for him daily. Keep your eyes on the Son!
    Love in Christ,

    Stacey White

  3. Adrienne,

    Thanks for the update and the pics. You all look great.

    Praying about the next steps, and how God continues to reveal himself.


  4. The Lord has shown me another scripture for Noah….Jer.33:3 “Call to Me and I will answer you and tell you great and unsearchable things you do not know.” This is something that He is telling us to do, and saying what He will do in response to our obedience to do it. This is all about seeking Him….Jesus told us in the book of John that the Holy Spirit would take from what is His and make it known to us. He is faithful, and He will do it! Thank You, Jesus!!

  5. Hi Adrienne! Shoot me an email with your email address and I will send you photos from Molly’s wedding. Keeping you all in prayer.
    Love, tasha

  6. I’m Stacey White’s mom and I’ve been praying each morning for Noah and your family. You are such a reflection of our gracious Lord and Saviour. Your updates have truly touched me deeply. Thank you for sharing Noah. He is a very precious gift.

    Love & Prayers,

    Linda Powell
    PS 28:7

  7. I reached your site by following one blog after another. I have a seven month old son, who has been blessed with health so far. When I first saw the pictures on your blog, of this innocent beautiful baby with tubes stretching out of him, I could only sob.

    But then I went to the beginning and read your blog all the way through. My husband kept asking me – “If it makes you cry, why do you keep reading?” My answer? “Because I can’t stop.” Now I know why.

    I have been so moved by your words and so touched by your devotion to God. You and your family are wonderful people, and I want to tell you that your stories have inspired me to rekindle my relationship with the Lord. The day-to-day hustle and bustle can make it easy to lose touch with what is really important. I will be praying for you, and for Noah, and for the rest of your family. I want to thank you for sharing your story. It has brought me back into the Light. God bless you.

  8. hey i dont know you and i am reading your blog for fiest time,but i wanted to tell you that i will pray for noah and you are not alone and in this world there are people like you

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