Holy Smokes, what a day!
It’s late, so I’ll make this as short as possible for my own sanity…Noah’s PIC line had a bacteria, so they pulled that out today. I found out that in the NICU, when an infant has a PIC line put in, the protocol is a routine dose of Nystatin, an anti-fungal, until the PIC line is pulled out. Noah has had a PIC line in for 7 weeks…last night was the first time he was given Nystatin (You do the math).

Because they pulled the PIC line, they had to put in an IV line somewhere else. After poking his right wrist, right foot, left wrist, and left foot, there is now a line in his HEAD. NICU came to put it in because babies have great veins in their heads.

Risk Management got involved in Noah’s case today…just because we want stool, urine, and 3ml of his blood for our own tests, with a reputable lab. I won’t go into details because my heart is not to get everyone else worked up, but just to inform so everyone knows how to pray…

We had a good talk with our favorite Attending today, expressing our feelings, concerns, opinions, and sentiments. Sorry, again, no details, just know that your prayers are coveted for Noah.

You may all be tired of living vicariously in the PICU for 8 weeks now, especially being frustrated not having answers and knowing that the docs here aren’t searching for any more. Please don’t grow weary in well doing. Keep praying. Jason and I do not feel like 8 weeks is anything in the scope of life on earth and have not felt released in anyway from this scenario. Thank you for walking this journey with us and bearing this load. We could not do this without all of you, wherever you are!

Today I was feeling strongly for men to be praying for Noah. My dear friend who brought dinner to us tonight told me that her husband has been praying for Noah since he was in my womb and that he prays for Noah every day. I have never even met her husband! It was so encouraging to know that what I was feeling in my heart, God was already laying on the hearts of praying men.

Okay, bed time. I’ll check in tomorrow. Have a blessed night! Peace!



10 Responses

  1. I’ve been filling my husband in on Noah’s status. We’re still watching and praying everyday and haven’t given up on “being there with you.” Thank you for continuing to post. We’re with you in the hardship and pain, and when the miracles begin to happen we’ll get to take part in your immense joy. For that we are blessed!

  2. Keep on the path to holding everyone’s feet to the fire. Through my experiences, if you don’t have someone around asking questions of every person involved in someone’s healthcare, then crucial things get overlooked or ignored. So do NOT second guess your decision to bug the heck out of everyone!!!

    High Five!

  3. Adrienne, It was so good to “run into you” at the hospital yesterday. You are such an encouragement and inspiration to me. Thank you for blessing me. I praise God for how He is sustaining you and your family and how you are using this experience to tell others of His love. What a journey this has been. Keep listening to Him; it sounds like He’s been telling you so many great truths. Thanks for letting us know through this blog how we can pray specifically. Noah is touching us all. Shalom, Kristin

  4. Erin and I are praying for Noah! We read your blog everyday and I am making it a focal point of my prayers. Thanks for the great example you 2 are providing. I can’t imagine…and the way you 2 are handling it is a blessing on so many lives. We are praying for you, hang in there!

  5. We are still believing with you and we continue to lift up Noah constantly. God has placed your family on our hearts for a reason and we have faith that the “break through” is coming!
    Much love,
    The Smiths

  6. FWIW, Nicky had a PICC line in his leg for nearly 2 months and I know for a fact that he didn’t have an anti-fungal running the whole time. Anti-fungals are *so* harsh on the lines. I can’t imagine using one for so long!

    I promise you those head PIVs aren’t as bad as they look. Nicky had several over his 2 stays and *he* never seemed to mind them as much as the hand or foot ones. We use to call it his ‘antenna’ 🙂

    Don’t let the rookies try to stick him any more – seriously – refuse them when they come! Tell them he’s a hard stick and you want the best they have. It got to the point where I would request certain phlebotomists to do his draws or IVs. My kid’s not going to be some rookie’s pin cushion!

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