death

It’s a Beautiful Day

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Eleven years ago, it was bitter cold in Denver, Colorado. 2 or 3 degrees, if I remember right. The chill is still part of my memory, though most of me felt numb. Jason went out to the parking garage of Children’s Hospital to pull up the car and let it warm up for a few […]

hospital life

Nurse are Amazing

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Noah and his lovey, Nurse Maria Noah is crushing on his nurses! He’s become quite the heart melter in the PICU. He’s got nurses lining up left and right to be on his primary list. He is one blessed little guy with all these wonderful nurses who care for him around the clock. They are […]

hospital life

Our Son the Rabbi

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Our son, the Rabbi… Noah’s cotton balls that protect his ears from his hat straps unraveled from squirming around so much. We think he looks like a Hasidic Jewish Rabbi. We are very proud of him:) This little ensemble makes Noah look like a Hasidic Jewish Rabbi.

hospital life

The PICU TickleMonster

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We have a favorite book which we found in England last year.  Em, Nana, and I tagged along while Daddy worked and one day we discovered this book.  Even though we are stuck in the hospital and Noah is a very sick boy, his big sis still needs tickles and snuggles and love. The Tickle […]

hospital life

Two Weeks

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Well, we have been at TCH for two weeks now. Noah is in serious but stable condition. We continue to wait and wait and wait for test results. Thanks for your patience as we wait patiently here. We’ll keep you posted as we know anything. They have been on the phones checking on the status […]

hospital life

The Loaves and Fishes

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I just wanted to encourage you all with the fact that the meals that are coming our way by all of you generous friends and family are not only delicious, but they are nourishing more than just the Graves crew. There is a young couple here from Pueblo that have a 4 month old in […]

hospital life

August 14th

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What a morning! So, the new nurse today got tangled in Noah’s feeding tube and almost pulled it out! We had an x-ray to make sure it was still leading into his small intestine and it was, thankfully.  Noah and I slept great last night. We both slept pretty soundly for two 3-4 hour increments. […]

hospital life

Parenting from the Hospital

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July 11th, Em’s first gum chewing extravaganza… So, I don’t know how to do an entry w/o a picture, so will have to ask Jason that question in the a.m., but chose this one so you could all see how Big Sis is doing…So, I made up a rule two years ago that our kids […]

hospital life

PICU, ROOM 8

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PICU, ROOM 8 We’ve moved in. Since Jason works from home, he is able to do some Internet work while hanging out with Noah. We are grateful God opened the door for him to work for a great company in England, working from home. We have the smallest patient but the biggest room in the […]

hospital life

Noah and Auntie Danar

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My younger sister, Dana, holding Noah in TCH Denver PICU Last fall Dana made a CD for our women’s retreat with songs that she chose for various reasons, all of which are awesome praise and worship songs. At Noah’s birth, we played the CD continuously and it has been playing continuosly since we moved to […]