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Taking a dip Noah got a “dip” bath yesterday instead of a sponge bath. His nurse held him while I washed his back. He didn’t seem to squirm too much. Notice his big new blue sponges on either cheek. Apparently the Respiratory Therapist didn’t love the Rabbi look… Yeah, and on me, that’s called a […]

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Have you guys noticed how cool Noah’s blankets are? Well, a friend of mine makes them, the sushi one and the brown and blue polkadots…anyway, she sells them on www.etsy.com, an on-line artisan website, under My Dolce Baby. She told another etsy girl, mamamonkey.etsy.com, about Noah and she was so touched by his story that […]

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Well, Noah had a bit of a rough night last night. He’s stable this morning but he had a weird episode where he freaked me out enough to push the red emergency button above his bed. 3 seconds later the lights were bright and 10 docs and nurses were bedside. With Noah’s hypotonia, he usually […]

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Apologies across the board…So, since I moved to 19th and Downing, that is TCH, a lot of significant days have passed…I apologize for not recognizing them with calls, though please know I’ve thought of you on those days…Heather Rudolph on the 8th, along with Lillian, Uncle Chris on the 10th, Bob and Betty on the […]

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August 19th, Noah’s 10 week Birthday… Every Saturday is Noah’s birthday, weekly, that is. He’s gaining weight and so every time we take his rhinocerous O2 mask off, he looks different than the day before. He’s getting a little chin and chubby cheeks, too, thank God. We had some awesome news yesterday concerning many of […]

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Bubble Magic Emily got a bubble sword for her birthday from her buddies, the Haugens. Here are some pics of Em making mammoth bubbles in our back yard. She’s also sporting her new leotard from her friend, Jackson. It has “diamonds” on it and a twirly skirt.  

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He had a bath While Noah had a bath, I snapped a few pics so you could all see how cute he is! He has gained weight, so that is great! Today, actually in moments, he is having a spinal tap to collect spinal fluid for further testing. My mom is here with me because […]

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Noah Stephen– Friday morning 8/18/06 Here are some new prayer requests for Noah and the family. Noah will have a spinal tap done today at 11. This will provide more for testing. Please pray for Noah during the procedure. He will also have a nerve conduction test done. They are also watching his blood count […]