This morning when I worked out at 24hr Fitness, I talked to this girl that works at the front desk who was cleaning in the gym while I did lunges…anyway, she asked how I was doing and I told her that I was working out to fit into a dress for a friend’s wedding but was cramming in my workouts due to living at the hospital with Noah. She asked about Noah and I told her that no one knew anything but that Jason and I trust God with Noah. She said that that was the best plan, trusting God, and then proceeded to tell me how she is 19 years old and grateful for her job because she solely supports her mom and 16 year old brother. Her dad walked out on the family recently when her mom was diagnosed with rheumatoid arthritis in her veins. So, please pray for Vanessa, her mom Sharon and her brother Skyler. Also, pray that her dad realizes his sin, goes quickly to his knees and goes humbly back to his family. Thanks!

*Noah had a good day today. He hung out with his auntie and nana and big sis and daddy and mommy. He was pretty busy with a bath and trach care, but not too busy for snuggling. I love holding him and looking at his long eyelashes. My neck is reminding me of how I used to nurse him and get kinks in it from staring at him. Thankfully we have a wonderful nurse on the floor who integrates massage for patients AND parents! Tomorrow I’ll learn the ins and outs of infant massage.

One of the labs wants my blood, too, so they can compare to see what Noah and I might have in common as far as what could have broken the placenta barrier. I was encouraged that they want to look at my blood as it’s really the first effort down that road. Noah remains stable but weak. His rash on his body comes and goes in varying degrees every day. His NJ tube is now functional and he’s had “munchies” running all day now. He’s snoozing away now for the night. Sweet dreams to all of you!



3 Responses

  1. Thinking and praying for you guys! Ade your such a gift to the Graves family…… Hey did you know were coming for a few days the end of the month (26-29) for Erika’s wedding, it will be quick but at least I’ll get to see the hottie (Noah)!
    Love you

  2. I continue to pray for Noah and praise God for your faithfulness. We may never meet this side of heaven, but we are in the same family. May I share with you the blog (same site) of a little one named Simon….
    His family is going through some of the same things you have. Though not as long but still a bit of a mystery.
    Blessings…your friend Gail in Ohio

  3. Hi there. I’ve never met you guys but read your updates occasionally thru Dave Hasz’s site. My mom’s a medical assistant for a pediatrician and I sent her some of the findings from your site and she said it might be worth looking into something called celiac disease. Maybe you already have, but I just wanted to throw that out there. Best wishes and God bless each of you!

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