It was A Beautiful Day…
Here is “Grampa Cloy” making it all happen (not the sunshine and breeze, of course, that was God…) today. He hooked Noah up with a wagon and O2 tank and off we went. Cloy is the head honcho RT at the hospital and he is someone we really love! I hope you all get a chance to meet him some day because he is an exceptional man, wired deeply with a humble heart, and he knew it was this mom’s dream to get her peanut out for fresh air for the first time in 11 1/2 weeks! Give it up for Cloy, people!

Noah loved his outing, though he doesn’t remember it as he was worn out from his bath from earlier this morning. My folks watched him while I ran errands and
picked Em up from school. He has NO fever today and his face is looking so much better now that he’s off the antibiotics. Day by day, one step at a time. When Jesus said not to worry about tomorrow as it has enough trouble of its own, I’m slowing learning that beautiful lesson.
What a big day! Noah not only adventured outside, but he had tummy time for the first time in 11 1/2 weeks, too! It was such a great day! Noah had special visitors…Bobby and Bebe, Big Sis, my new dear friend, Mandy and her friend, now ours, Tiago, from Brasil. The small world story that comes from that connection is AWESOME. God is so cool how He makes a world of 5 billion seem so small. Another way I was so blessed today is that I got to talk to one of my favorite people in the world, a woman who has spent a lot of time in the hospital with her children, whom I adore, and whose faith and strength astounds me… our lives are so rich in knowing wonderful people that love us and who we love in return. I’m without words… Posted by Picasa



19 Responses

  1. Such a joyous entry today! I’d like to think that the sun today was just for him — a gift from God. It sure was a pretty day, wasn’t it?



  2. I am so thrilled that you were given a day like today! What a gift you were given today after many hard days. Thank God for the respite!

  3. It is so good to see Noah out of his hospital bed. I have tears of joy for you today. I pray this is the first of many good days to come. Our prayers continue for your family. Thank you so much for sharing this journey and being an inspiration to so many.
    God Bless!

  4. WOW! He’s obviously growing in spite of his challenges… So strange, this whole thing. But, I truly believe that it will all make sense sometime very soon.

    Praise God for sending encouraging people your way.

    Rejoicing with you,

  5. Adrienne, you and your family have encouraged me (and obviously so many others) in the midst of your storm. I thank God for the beautiful day you had…

  6. Again, Noah is touching lives across this country. S0 very thankful for this GOOD day. Praise our God for His goodness. We know He sees each hair that falls from our heads. May He continue to renew your strength. You are a blessing to all.

  7. I love Cloy, too! I’m glad you had a great day! As for other business, I have a friend who’s 4-month-old baby will be coming into TCH for open-heart surgery soon, and would love to have a friend there. Can you email me at and I’ll hook you up with her?

  8. God is so beautiful, so big, so magnifiecent! We left yesterday feeling so wonderfully overwhelmed and filled! Noah brings peace and love…being with him was a such a gift. To come pray for Noah and to leave with the prayers you prayed for us, was such a beautiful picture of our God…He is glorious! Thank you for blessing us in multiple ways! Your family is beautiful! Love, Mandy

  9. Praise Jesus!!!!! For His love for us and through us and others is such an awesome power. May He continue to show you His love in so many different ways.

  10. I recently had a friend’s baby diagnosed with Shwachman’s Syndrome. (Or Shwachman-Diamond Syndrome; ). I’m sure little Noah has been tested for this. But thought I’d post it just in case since there are some similarities in symptoms. Praying that a break through comes soon as to what’s going on with your little guy!!!

  11. Precious Noah.. You are on my mind every minute of every day. And you are on God’s mind. His Word says that “Before you were born, the Lord called you, from your birth he has made mention of your name. He will not forget you as He has your name engraved on the palms of his hands and He will contend with those who contend with you and He will save you. Isaiah 49. I pray that today will be a miracle day! I love you with every ounce of my being… love Nana Kaija

  12. Congratulations on so many happy things! Including your baptism… my 8 year old daughter just got baptised yesterday and it was beautiful, as are your reasons for doing it!

    Still praying for more healing for Noah!

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