Noah is out of surgery and sleeping now in his room. He’s doing good. We still can’t hear him cry because of swelling from normal surgery. He’s been “fasting” all day because he needed an empty stomach for the g-tube. His face is swollen from all the adhesives…they tape their eyes shut so their corneas don’t dry out during procedures…well, Noah is sensitive to adhesives, so he’s extra pink and extra puffy right now. *Parental creative suggestion: place cotton balls over eyelids prior to tape placement!!!
Since he grew over the last month while “tubed” his cheeks grew on either side of the tape, so there’s a horizontal dent under his nose from cheek to cheek! It just takes a little time for the swelling to go down.
The docs took a muscle biopsy and sent it to pathology right away. The metabolic geneticist will meet with us on Monday after he reviews any findings from the skin and muscle biopsies. Also, the audiologist came in while Noah was still sedated and did her testing. She’ll review that and get back to us next week.
I’m going home to have a slumber party with Em and the boys will hang here tonight. THANK YOU ALL FOR YOUR PRAYERS AND SUPPORT! God is good!